Information: The following organizations are good resources for information on Tay-Sachs Disease:
National Tay-Sachs and Allied Diseases Association
2001 Beacon Street, Suite 204
Brighton, MA 02135
800-906-8723
www.ntsad.org
Genetic Alliance, Inc.
4301 Connecticut Ave. NW, Suite 404
Washington, DC 20008-2369
202-966-5557
www.geneticalliance.org
National Organization for Rare Disorders, Inc. (NORD)
55 Kenosia Avenue
P.O. Box 1968
Danbury, CT 06813-1968
203-744-0100
www.rarediseases.org